Wow. Talk about an invasion of privacy! Why the heck would they want to know about that?
Facebook has asked several major U.S. hospitals to share anonymized data about their patients, such as illnesses and prescription info, for a proposed research project. Facebook was intending to match it up with user data it had collected, and help the hospitals figure out which patients might need special care or treatment.
Notice that they didn’t ask users whose data would be collected and matched with profiles, they asked ‘several major hospitals’.
That’s kind of telling, isn’t it?
It’s pretty indicative of the value that Facebook puts on its users.
‘Who the hell cares about the users of the platform! Let’s just get all the data we can on them and use it for our profit. Then apologize for it.’
Lather. Rinse. Repeat.
The proposal never went past the planning phases and has been put on pause after the Cambridge Analytica data leak scandal raised public concerns over how Facebook and others collect and use detailed information about Facebook users.
“This work has not progressed past the planning phase, and we have not received, shared, or analyzed anyone’s data,” a Facebook spokesperson told CNBC.
Because that’s some scary, scary crapola right there.
Watch Beverly Hallberg discuss the issue on Tucker Carlson’s show:
Medical records are protected by state and federal patient privacy laws to ensure that the sensitive medical information doesn’t end up in the wrong hands.
To address these privacy laws and concerns, Facebook proposed to obscure personally identifiable information, such as names, in the data being shared by both sides.
However, the company proposed using a common cryptographic technique called hashing to match individuals who were in both data sets. That way, both parties would be able to tell when a specific set of Facebook data matched up with a specific set of patient data.
The issue of patient consent did not come up in the early discussions, one of the people said. Critics have attacked Facebook in the past for doing research on users without their permission. Notably, in 2014, Facebook manipulated hundreds of thousands of people’s news feeds to study whether certain types of content made people happier or sadder.Facebook later apologized for the study.
What a shocker.
Facebook does something unethical without user knowledge or consent and then apologizes.
Bro, we signed up for the social media platform to connect with slightly-crazy Aunt Louise, our now-successful cousin Frank, and our old college pals, not to be guinea pigs for psychological tests!
Here was a snapshot of the proposal:
Facebook’s pitch, according to two people who heard it and one who is familiar with the project, was to combine what a health system knows about its patients (such as: person has heart disease, is age 50, takes 2 medications and made 3 trips to the hospital this year) with what Facebook knows (such as: user is age 50, married with 3 kids, English isn’t a primary language, actively engages with the community by sending a lot of messages).
The project would then figure out if this combined information could improve patient care, initially with a focus on cardiovascular health. For instance, if Facebook could determine that an elderly patient doesn’t have many nearby close friends or much community support, the health system might decide to send over a nurse to check in after a major surgery.
It’s all for your benefit, really.
Just like that 2014 happy/sad newsfeed manipulation study was for someone’s benefit, right?
Health policy experts say that this health initiative would be problematic if Facebook did not think through the privacy implications.
“Consumers wouldn’t have assumed their data would be used in this way,” said Aneesh Chopra, president of a health software company specializing in patient data called CareJourney and the former White House chief technology officer.
“If Facebook moves ahead (with its plans), I would be wary of efforts that repurpose user data without explicit consent.”
A social media company wants access to your private health records?
You know what I say to that?
Hell to the no.
We don’t want you ‘data-mining’ our medical records and our profiles for your ‘research projects’ without our informed consent.
by Doug Giles
Doug Giles, best-selling author of Raising Righteous And Rowdy Girls and Editor-In-Chief of the mega-blog, ClashDaily.com, has just penned a book he guarantees will kick hipster males into the rarefied air of masculinity. That is, if the man-child will put down his frappuccino; shut the hell up and listen and obey everything he instructs them to do in his timely and tornadic tome. Buy Now:The Effeminization Of The American Male
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